This about sums it up

I am, for the most part, always tired. I know it's because of the MS, but that doesn't make it any less frustrating. It actually almost makes it more frustrating because there is NOTHING I can do about it, and it is something that no one seems to be able to understand. The best way I can describe it is this...imagine you have been awake for days, with no sleep. And then imagine that you must go solve some major challenging problem that requires tons of brain power. And then imagine, that while you're solving this crazy problem, you have to compete in an Iron Man Triathlon. I'm sure you think this is an exaggeration, but it actually still doesn't really describe the way MS fatigue feels. It's like even my bones are tired.

Anyway, my point is that most days I just suck it up. I go to bed pretty early and make the best of it. I also have a prescription for a medication that they also prescribe to narcolepsy patients for when it gets super bad. I also take a nap a lot of days when Mason takes his nap.

Apparently, my son is also worn out by the end of the day. He has always been pretty vocal with us about when it is time to either nap of go to bed at night time. He doesn't mess around when it comes to sleep, and he's a lot like his mother when it comes to the direct relationship between sleep and mood. But this next story is definitely a first.

The other night in the bath tub, after the water was drained out and he was just playing around with the shower head, he took his washcloth, spread it out on the floor of the tub, laid down, and said nigh-nigh. While we don't actually let our son sleep in the tub, it was definitely something that had to go on long enough to catch on film.