How could I forget to mention that Papa finally came home?! Mason had been counting down how many sleeps until Papa would be home, and ever since has been telling us "No more sleeps left!!!"
Mason missed his Papa so much, this was really the first year that he realized what it meant to have him gone for so long. One night, as he was looking at his "where is Papa" map, he got tears in his eyes and told me that "Papa went too far on his motorcycle and he got lost. Now he is lost and all alone." It was so sad and a little pathetic, too.
Here is Mason showing off his muscles in his outfit Papa got him in Sturgis
August 31, 2011
Wee bit Wednesday 19
{one} what's your guilty pleasure tv show?
Wow, I hate to admit, but I have quite a few. Any of the Real Housewives, Top Chef,
any Kardashian nonsense....it's actually embarrassing how
much I love Bravo and Andy Cohen!
{two} ear piercings on men: yes or no?
That's definitely a no.
{three} do you have dish or comcast?
Neither. We have GCI.
{four} what's your favorite current fashion trend?
Well, since it's turning into fall everywhere else,
there are fun boots all over the place.
{five} if you could learn to do anything, money not being an issue, what would it be?
I would love to learn how to surf....in warm water/weather, of course.
{six} red or white wine?
Red.
{seven} what type of food is your favorite (ex. italian, mexican, etc.)
Italian. (Duh)
{eight} hp or mac?
I am a total Mac convert!
{nine} what color is your bedroom?
It's kind of a blue/grey color
{ten} what's your favorite form of exercise?
I actually love group classes, I need the
motivation from others to keep going!
August 30, 2011
Until we meet again
Mason helped me through one of my infusion appointments. |
He was great company, and did a great job leaving my port alone |
I thought I should do a little update about the recent MS flare I had. Three days of steroids ended up not being enough, so I did a total of 5 days. They really are just about the worst thing ever, but thankfully it wasn't all for nothing because they did actually help.
Texas Ranger is packed away. I'm hoping I won't ever need to use him again, but I'm pretty sure the reality is that he's just put away until next time. I hate to admit this, but having a walker did actually help a lot. I felt more stable walking and was able to get out of the house a little bit.
I ended up having new MRI scans done of my brain (stable), cervical spine (stable) and my thoracic spine (new lesion). Luckily these were done over two days, and my neurologist gave me xanax. I'm definitely not happy about having a new lesion, but at the same time it's nice to have a reason for this latest flare.
My next Chicago visit has been bumped up to October, rather than December. I'm not sure what the plan will be exactly, but they will do my EDSS again and I guess go from there.
Todd was amazing (as always) during this whole thing. I can't imagine how he must feel having to sit back and watch all of this unfold, but he never lets on just how much he must hate it. He stayed home to help with Mason and got me to and from all my appointments. He even put up with me being a COMPLETE LUNATIC while I was on the solu-medrol infusions (although he later described it like dealing with a pregnant woman on meth).
I'm happy to report that I'm back to my normal self, and I'm not longer crying or screaming randomly like I was. Of course, my normal self has it's own share of neuroses, but at least they don't include me cussing out my husband for mowing the lawn (yes, that really happened). Physically I don't feel like I'm back to "normal" (or at least what my normal was before the flare), but I'm hoping that it will continue to improve as time goes on. Or, if it doesn't, I at least hope that my EDSS reflects it and I'll get moved into the treatment arm of the Chicago study.
August 24, 2011
wee bit Wednesday 18

August 23, 2011
HAIR we go again!
Our season tickets for the Anchorage Symphony came in the mail the other day. I can't believe it's just a few weeks until the season opener!!! I'm really excited about the concerts coming up, especially the Planets concert this winter. I have been saying for years that I want ASO to perform the planets, and it's finally happening.
And of course, the start of the ASO season means the start of another season of ogling at Randy's hair!
And of course, the start of the ASO season means the start of another season of ogling at Randy's hair!
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